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Listings are in alphabetical order by first name
A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - XYZ
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Aiden •Wyandotte •DOB: Sept 05 •BCLP, Acid Reflux •Detroit Children's
I was 18 wks pregnant when my ultrasound showed that Aiden would be born with a cleft. Months later, we found out the case was genetic. Aiden's lip was repaired at three mths of age and has been through two surgeries to repair his palate. Even though he has been through so much at such a young age, he always has a big smile (matching his beautiful brown eyes) on his face. Monica, Mom to both Aiden and Ryan
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Andrea •Spring Lake •DOB: Oct 86 •UCLP •Rex Hospital
My name is Andrea, I was born with a cleft lip and palate. I had the surgery to close my palate when I was 18 months and I had my nose surgery when I was 14. That was my last surgery and I am now attending college hoping to be a nurse someday. I am really grateful for talented surgeons because today most people can not tell that I was born with clefts.
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Andrew •Jacksonville •DOB: Oct 04 •SCP, Microtia, Cardiac, PRS •Wolfson Hospital
I'm single mom of two beautiful children; a twelve year old daughter and Andrew, who is three. He has several conditions in addition to the cleft. He has conquered multiple heart defects, TEF repair was a complete success and his G-tube was removed in 2007. He has microtia and is completely deaf in his left ear. He has speech issues due to his hearing impairment, and about a 3% grade on his submucous palate. Angela, Mom
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Read my Spotlight Story!
Ashley •Ann Arbor •DOB: Dec 85 •BCLP •St. Joe's Ypsilanti
We are the lucky parents of a beautiful young lady who is now a senior in college, who will be submitting some of her own experiences soon. While some of the cleft related experiences have been difficult at times over the years, we have been lucky to have such a good medical team and the results have been great. David & Janet , Parents
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Ben •Hudsonville •DOB: July 05 •BCLP •MiCleft Angel •Spectrum/Devos Children's
Ben is a patient of Dr. Mann's. He has had two lip repairs, two palate repairs, four sets of ear tubes, and bilateral hernia repair. He is doing very well and has started talking up a storm. His strength and sense of humor has brought pure joy to his family. Nichole, Mom
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Brandon •Westland •DOB: Dec 03 •BCLP, PRS •MiCleft Angel •Detroit Children's
Brandon's BCLP was repaired at three months and ten months. He also had Pierre Robin Sequence, which was repaired with mandibular distraction at 1.5 wks of age. He is currently in preschool and enrolled in their speech therapy program to improve his articulation. Amber, Mom
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Brielle •Linden •DOB: Feb 07 •UCLP, ASD •University Hospital
Brielle was born with both cleft lip and palate. She had her lip repaired in June 2007 and underwent a palatoplasty in November 2007. She was also born with ASD (hole in the heart) which will need to be closed sometime in March of 2008. Kristine, Mom
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Bryson •Augusta •DOB: Mar 07 •ICL and affected Alveolar Ridge •University Hospital
We did not know that Bryson would be born with cleft lip until the day he was born. He has an older brother that was born perfectly healthy. No one in our family has a cleft lip, so our case was not genetic. Bryson had the Nam placed in when he was two weeks old. He underwent surgery at four months old, and it's hopefully all he'll need. Ashley, Mom
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Carmen •Wyoming •DOB: Dec 06 •UCLP, Pierre Robin Sequence •DeVos Children's
Carmen has Pierre Robin Sequence (recessed jaw and severe cleft palate). She is one of twin girls born in November 2006. She is thriving and doing well. Visit our carepage - CarmenAlberta. Lisa, Mom |
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Ciara •Columbia •DOB: Aug 95 •UCLP, Amniotic Band Syndrome
Ciara was born with cleft lip and palate caused by an amniotic band. She has undergone 13 surgeries; fall of 2007 being most recent. Kayla, Mom |
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Clare •Commerce Township •DOB: April 07 •ICL, lop ears •Royal Oak Beaumont - Shaheen
We found out about Clare's cleft at our 18 week ultrasound. She was born with a unilateral incomplete cleft lip. She is such a blessing to us, and brings us so much joy. Stephanie, Mom |
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Darren •Washington •DOB: Feb 02 •UCL, BCP, EEC Syndrome, Coarcation of the Aorta, Adrenal Gland Disorder and many other minor issues. •Malcolm Grow Medical Center, Andrews AFB Maryland
Darren is a fun loving, very personable little fella. Darren's doing so well, that he doesn't require speech therapy at this point in time. Feel free to ask any questions regarding his p-flap surgery. It was well worth going through. Catherine, Mom |
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Dominic •Grand Rapids •DOB: Sept 07 •UCLP
Dominic was born with a cleft lip and palate. We are so lucky that's all he was born with. He is a giggly little boy. He has only had one surgery so far. One more in July and then more at 18 months and then he's done until the bone grafting. Courtney, Mom
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Donavin •Inkster •DOB: Jan 01 •UCLP, Amniotic Band Syndrome w/ Rt-Elbow Amputee
•MiCleft Angel •Detroit Children's
Donavin's cleft lip was repaired when he was only a week old. He is also an amputee; below his right elbow joint. The challenge before us, is for a reason - so that we can inform people and give them support like it was given them. No one is alone, we are all in this together. Cheryl, Mom |
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Emmanuel •Detroit •DOB: Aug 07 •UCL, affected Alveolar Ridge,
polydactyly (thumbs)
•Detroit Children's
Emmanuel
has been through one surgery and one revision with at least one surgery for his thumbs coming up. But, at least all this medical attention he's getting hasn't changed his sweet disposition. Tasha, Mom
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Gavin •Clio •DOB: Sept 05 •BCLP, Severe Tracheo - Bronchial malacia, ASD/VSD, Dandy Walker Variant •UofM - Mott's
Gavin is doing great at home. He went in to have a feeding tube placed and a nissan fundoplacation and ended up having emergency tracheotomy with a vent to keep his air way open. He is such a tough little guy despite all the obstacles. Gavin is our little miracle baby. Robin, Mom |
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Hailey •Covington •DOB: July 06 •BCLP •Cincinnati Children's
This is my baby girl, Hailey! She was born with a bilateral cleft lip and palate and her pre-maxilla comes out of her mouth. Here is a photo after her first surgery, the second was in December 2006. Rae, Mom |
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Hannah •Dearborn •DOB: July 01 •UCLP •Detroit Children's
We found out early in the pregnancy that Hannah would have a cleft palate. She had her first surgery at four months, which included ear tubes, lip repair and rhinoplasty. She's went thru five surgeries thus far. Some unknown complications have come about recently with her sleeping and eating, but otherwise she is doing awesome! She has attended speech therapy since she was two and is as well understood as any other child her age. We still are on a continuous schedule of doc visits, mostly related to dental. I feel for awhile, that this is going to be a continuous cycle, as she continues to grow and develop. Candy, Mom |
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Heather •Grandville •DOB: Dec 79 •UCLP • MiCleft Angel
•Spectrum in Grand Rapids and Providence - Southfield
Heather was born with a cleft lip and palate in December 1979. She has undergone nine surgeries and now strives to be a source of encouragement and support to others touched with a cleft lip and palate! |
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Jakob •Kentwood •DOB: June 07 •UCLP •DeVos Children's
Jakob Stanley was born with a unilateral cleft lip and palate. He has had one surgery; an initial lip adhesion. His next surgery is March 4th 2008, to close his palate. Amy, Mom |
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James •Monroe •DOB: May 02 •UCLP •Detroit Children's
My son was adopted in June of '05 from Xinxiang Henan China. James may get braces this year, but we don't anticipate any surgeries. He's doing great in school and recently started playing soccer. Julie, Mom |
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Jayden •Naples •DOB: Oct 05 •BCLP
Here is a picture of me and my sweet little angel! Jodi, Mom |
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Jennifer •Dearborn •DOB: July 87 •UCLP •UofM - Mott's
I was born with a cleft lip and palate in July 1987. Since then I've undergone 27 surgeries, and I keep coming back for more! |
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Johnny •Dearborn Heights •DOB: Nov 04 •UCLP, Deviated Septum, Sensory Oral Dysphasia, MRSA •MiCleft Angel •Detroit Children's Read my Spotlight Story!
We were unaware of Johnny's anomalies until birth. He's changed us in so many ways and we can't imagine life without him. He's a survivor of MRSA (2.5 yrs of monthly outbreaks), has had five craniofacial surgeries and has speech/articulation therapy twice weekly. This wild boy towers his peers and doesn't take guff from anyone, yet his charisma and smile captures everyone's heart. Teresa, Mom and MiCleft Founder |
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Justin •Warren •DOB: May 05 •SCP, Pierre Robin •Detroit Children's
Justin was diagnosed with a soft cleft palate and Pierre Robin. All of which the high risk pregnancy doctor didn't detect. He has undergone palatoplasty, tubes in his ears, and distractors in and out. He is a happy baby boy that is into everything. He fought hard to be here today and I'm enjoying every minute of being with him! Melissa, Mom |
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Kai •Mason •DOB: July 07 •BCLP, Ectodermal Dysplasia (Hay Wells), ankyloblepharon of the eyelids •Sparrow/UofM Mott's
Kai (and my husband) were both born with a bilateral cleft lip and palate. We knew Kai would have a cleft at our 18 week ultrasound. What we did not know was that he had skin tags holding his eyelids partially closed when he was born. He has had them removed, has undergone lip adhesion and is recovering from lip repair. Fran, Mom |
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Keira •Temperance •DOB: June 04 •UCLP •Detroit Children's
Keira was born in China, and is our fifth child. She's brought us such joy and is a burst of personality. She loves to sing, yell at the dogs and is always on the go. We're so happy Keira has joined our family! Laura, Mom |
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Kieran •Harrison Twp •DOB: Mar 99 •SCP, Apert Syndrome, Complex-Partial Seizure Disorder, ADD, Reflux, Bilateral Hearing Loss •MiCleft Angel •Providence - Southfield
Kieran had a submucous cleft palate w/bifid uvula. It was repaired by Dr. Jackson at Providence Hospital, one of his 20+ procedures. Sherry, Mom |
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Read my Spotlight Story!
Kim •Ruth •DOB: Sept 96 •Pierre Robin, Amniotic Band Syndrome •Detroit Children's
Kim is our little package of dynamite! Her zest for life is contagious and she touches everyone she comes in contact with. Kim became a member of our family, after spending some time in foster care, in her birth-state of Texas. She has 14 siblings, (nine of which are special children) and enjoys the animals on our family farm. She even has ponies! She has undergone many procedures, but nothing has stopped her. Feel free to contact me, I would love to help other families! Sue, Mom |
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Kyle •Oscoda •DOB: Mar 87 •UCLP •MiCleft Angel
Kyle is enjoying life and attending Ferris State University! Jeanne, Mom |
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Lisa Michelle •Montrose •DOB: Jan 86 •BCLP, Tessier Cleft •Boeman Gray/Wake Forest University Hospital
I've had 63 reconstructive operations, and am looking at having at least one more. |
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Marco •Huron •DOB: June 07 •UCLP •MiCleft Angel •Detroit Children's
Marco and twin brother Dominic (no cleft), joined big sister McKena in June. We were very surprised about the twins, but even more surprised that one would be born with a cleft like our daughter. Having no history in our family, we were quite shocked, but, we were quick to remind ourselves how lucky we were to have three beautiful children! Marco has been just as amazing as his sister and has taught us that indeed, each cleft is very different. We have stayed with the team we feel is the best in the business - Detroit Children's. Becki, Mom to both Marco and McKena |
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Marcus •Eugene •DOB: Jan 07 •UCLP •Sacred Heart Hospital
Marcus would love to share his story, he has had an exciting life so far. We found out about the clefts during the fifth month of pregnancy. He had lip surgery in April and a palatoplasty in December 07. We used the Pigeon nipple succesfully. We taped his lip before surgery, which was work, but the results were worth it. He wore nose stints for three weeks, then we applied silicone sheeting with tape, to help healing. Looking over these pages has been real helpful to us. Cori, Mom |
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Read my Spotlight Story!
Marcy •Howard City •DOB: June 04 •BCLP •MiCleft Angel •DeVos Children's
Marcy was a complete surpise, as was her twin sister Marie. We found out about Marcy's cleft at our four month ultrasound and we knew it was possible - we have a 50/50 chance of clefts, as our situation is genetic. She's always been full of smiles, but now she's smiling brighter than ever - we had our fifth child in 2007! (Check out Rachel's 3D pic below!) Crystal, Mom to both Marcy and Rachel |
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McKena •Huron •DOB: April 03 •BCLP •MiCleft Angel •Detroit Children's
McKena is a beautiful little girl with a wonderful smile! She has been a trooper through all her surgeries, which to date, is six procedures before the age of five. We truly feel that the key to her great nose is the fact that she has continued to wear the stints at night. Becki, Mom to both McKena and Marco |
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Natalia •Huntington Woods •DOB: Aug 00 •BCLP, Trisomy 13 •Memorial Hospital
Natalia was born with Full Trisomy 13; what they term as a "not compatible with life" diagnosis. She's amazed all the physician's who care for her. She is very much alive, and thriving... ThereseAnn, Mom
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Oscar •Ferndale •DOB: Aug 05 •UCLP •Detroit Children's
We adopted our son in July 2007 from China. We are thrilled to have him home! His lip repair was performed in China in 2006 and his palatoplasty was performed at DMC in October 2007. Melissa, Mom |
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Payton •Ishpeming •DOB: Feb 06 •ICL, Alveolar Ridge •Upper Penninsula
This is our beautiful girl Payton Noelle. She was born with an incomplete unilateral cleft lip and alveolar ridge. She had her lip repair done at three months old, and a lip revision in 2007. Feel free to contact me with ANY questions :) Linda, Mom
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Rachel •Howard City •DUE: April 07 •BCLP •MiCleft Angel •DeVos Children's
Rachel is our second cleft-affected daughter, our fifth child, and happy bundle of joy. She recently had a palatoplasty, but it hasn't stopped her from cruising all over the house! Crystal, Mom to both Rachel and Marcy
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Reid •Orrville •DOB: Nov 07 •BCLP •Rainbow Babies Hospital - Cleveland
Reid was born in November 2007 with a bilateral cleft lip and palate. He is currently using the NAM device to get his premaxilla in line for his upcoming surgery in May 2008. He is our joy and blessing. Janeen, Mom |
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Rochelle •Richmond •DOB: Nov 99 •BCL, Hemifacial Microsomia/Goldenhar •UofM -Mott's
Rochelle had lip repair at ten months, and her first major jaw surgery, in 2007; a rib graft to her left side of her face. She suffered minor complications, but has healed well and we're optimistic that her body's accepted the bone and nothing was wasted. She is the cutest and bravest little girl. When I have a bad day, I remember she's up and on the school bus everyday with little complaint (aside school in general). She has made me a better person. Since her surgery, her maturity level and self confidence has soared. Lisa, Mom |
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Ryan •Wyandotte •DOB: Aug 01 •SCP, Bifid Uvula, Speech Delay •Detroit Children's
When Ryan turned four years old, we found out his little brother, Aiden, would be born with a cleft lip. Little did we know, Ryan also had a cleft. After reviewing Ryan's history of hearing and speech with his surgeon, it all made sense. Ryan had his first surgery and I can't wait to see the difference in his speech. He has come so far from his only word being...uh. Monica, Mom to both Ryan and Aiden
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Rylie •Archbald •DOB: Dec 05 •BCLP •Hospital not indicated
I found out about Rylie's cleft during a "routine" ultrasound. It was the third attempt of my 18 week ultrasound because Rylie enjoyed driving us crazy, even then. Her lip was repaired 3.21.06 and 5.16.06. It was done twice because the repair got infected the first time around. Her palate was repaired 9.12.06. We are going to her next cleft clinic this April, so we will see then what is next. Anita, Mom |
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Steven •Royal Oak •DOB: May 06 •UCLP •Beaumont Royal Oak
Steven was born with a unilateral cleft lip & palate - we were fortunate to find out during a routine ultrasound so that we could prepare for everything. He had a Latham device for six weeks (Dr. Spolyar), lip repair & bone graft at five months (Dr. Robert Forte) and palatoplasty at eight months (Dr. Robert Forte). His teeth & speech development are coming along nicely...and he looks fabulous! Christine, Mom |
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